Juvenile Idiopathic Arthritis (JIA) is one of the most common rheumatic diseases in childhood. Usually the disease is diagnosed before the age of 16 and is characterized by inflammation and joint pain. This pain can become chronic and a relevant problem for many teenagers, who view limited their participation in social activities with friends, and can therefore affected their quality of life. In particular, they have to face several challenges related to their disease and relationships with others, such as: to feel different and strive for normality, to feel stigmatized and misunderstood…
These adolescents develop several needs, such as information (how to manage their lives, when and how talk about JIA…). Therefore, it is important to address this area through psychosocial approaches. However, the access to this kind of intervention is limited, but the new information technologies can facilitate access to this population.
In front of this situation described, the study presents the overall goal of creating an online resource for these adolescents. To achieve it, the study will be comprises three phases: first, to know what are the needs of this population regarding their friendships and how should be an intervention via the Internet to help them in this regard (through in-depth interviews and focus group); secondly, to create and develop an online resource to help them to improve this area; and finally, to invite them to use this resource and to analyze the feasibility and satisfaction towards the intervention received.
To participate or receive more information: firstname.lastname@example.org or 93 326 34 18.
In the media:
Researchers from the UOC are making it easier for teenagers with Juvenile Idiopathic Arthritis to socialize. Current events UOC. 15 June 2016.
AIJ Teens in social networks:
Poster: Analysis of the friendship needs of adolescents with chronic pain: a first step towards the development of an internet intervention.
8th ISRII Scientific Meeting. Seattle, 7 – 9 April 2016.
Poster: Social functioning in children and adolescents with chronic or recurrent pain: a systematic review focused on explicative theories and mechanisms.
9th EFIC Pain Congress. Vienna, 2 – 5 de September 2015.
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